Functioning of the Family System With an Autistic Child: A Comparative Study Between Poland and California, USA

Keywords: ASD, flexibility and communication in the family system, educational relationships, family-educational institutional relationships

Abstract

Objectives of the research: The aims of this research are to conduct a comparison study between the level of communication and flexibility in families with autistic children in two different geographical locations and cultural contexts – California (USA) and Poland (Europe) – to address whether the level of these two dimensions of family functioning are related to the ego-resiliency of the parents, and additionally to discuss the practical implications that can be drawn from the results.

Research methods: Communication and flexibility profiles in family functioning were collected in Poland and California from September 2016 to February 2018. Data on the similarities and differences between parents of children with autism spectrum disorder in Poland (n=111) and California (n=105) was collected using Olson’s FACES-IV. The Ego-Resiliency Scale was also administered in methodologically standardized conditions and was empirically analyzed along with controlled demographic variables.

A short description of the context of the issue: Family functioning and ego-resiliency in families with children with autism are analyzed in this research. The richness of interactions and connections within the family system suggests that when explaining the relationships within the family system, the interpretation that is based on linear causality is abandoned and replaced by circular causality, which is the model of analysis utilized in this research project. The main goals of this research were to compare and contrast family functioning in two geographical locations and cultural contexts and to show statistically significant differences between these two groups, in order to better understand cultural variations and differences that may affect family functioning and ego-resiliency and to provide the different groups with adequate, necessary support services.

Research findings: The results revealed statistically significant differences in various dimensions of Family Communication and Flexibility between families of autistic children in California and Poland. With respect to both variables, higher scores were found in the California group. The flexibility results in both groups were defined as flexible. However, in regards to family communication, the result of the California group corresponded to higher standardized scores, whereas those of the group from Poland revealed moderate standardized scores.

Conclusions and recommendations: Statistically significant positive correlations were found in the variables of Flexibility and Family Communication between Poland and California. The results of this research are critical, not only from the perspective of scientific development (as similar studies have not been conducted), but also for therapeutic and preventive reasons. They suggest concentrating on preventive activities and aspects that are important for the well-being of the parent as a person, as well as the entire family system, especially the dimensions of communication in families with children with autism spectrum disorder and the ego-resiliency of the parents. However, further research is needed to specifically identify the differences between the groups based on various demographic variables. Additionally, it is important to develop a practical model to support families with autistic children and to address family satisfaction in intervention strategies, as well as to consider the importance of support groups that may improve satisfaction and ego-resiliency within the family system.

References

American Psychiatric Association. (2013). Neurodevelopmental disorders. In Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425787.x01_Neurodevelopmental_Disorders

Appelt, K. (2020). Rodzicielstwo – wspólna droga rozwoju dziecka i rodzica [Parenting: A common path of development of the child and the parent]. In L. Bakiera (Ed.), Rodzicielstwo ujęcie dyscyplinarne [Parenting from a disciplinary perspective] (pp. 81–98). Wydawnictwo Naukowe UAM.

Bertalanffy, L. (1984). Ogólna teoria systemów. Podstawy, rozwój, zastosowania [General systems theory: Basics, development, applications]. Warsaw: Państwowe Wydawnictwo Naukowe.

Block, J. H., & Block, J. (1980). The role of ego-control and ego-resiliency in the organization of behavior. In W. A. Collins (Ed.), Minnesota symposium on child psychology (Vol. 13, pp. 39–101). Hillsdale, NJ: Erlbaum.

Block, J., & Kremen, A. M. (1996). IQ and ego-resiliency: Conceptual and empirical connections and separateness. Journal of Personality and Social Psychology, 70, 349–361.

Boulter, C., Freeston, M., South, M., & Rodgers, J. (2014). Intolerance of uncertainty as a framework for understanding anxiety in children and adolescents with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(6). https://doi.org/10.1007/s10803-013-2001-x

Dempsey, I., & Keen, D. (2008). A review of processes and outcomes in family-centered services for children with a disability. Topics in Early Childhood Special Education, 28, 42–52. https://doi.org/10.1177/0271121408316699

Dunst, C. J., Bruder, M. B., & Espe-Sherwindt, M. (2014). Family capacity-building in early childhood intervention: Do context and setting matter? School Community Journal, 24(1), 37–48.

Elsabbagh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcín, C., Montiel-Nava, C., Patel, V., Paula, C. S., Wang, C., Yasamy, M. T., & Fombonne, E. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3). https://doi.org/10.1002/aur.239

Fombonne, E. (2020). Epidemiological controversies in autism. Swiss Archives of Neurology, Psychiatry and Psychotherapy, 171(1). https://doi.org/10.4414/sanp.2020.03084

Gerc, K. (2009). Studium porównawcze uwarunkowań postaw rodzicielskich w rodzinach dotkniętych niepełnosprawnością dziecka w świetle badań z lat 1997 i 2009 [A comparative study of the determinants of parental attitudes in families affected by a child’s disability in light of research from 1997 and 2009]. In G. Makiełło-Jarża (Ed.), W poszukiwaniu jakości życia współczesnej rodziny polskiej [In search of the quality of life of a modern Polish family] (pp. 193–210). Krakow: Wyd. AFM.

Gerc, K., & Jurek, M. (2015). Intrapsychic and sociodemographic correlates of the quality of life in mothers of children with motoric disability of neurologic etiology. In T. M. Ostrowski, I. Sikorska, & K. Gerc (Eds.), Resilience and health in a fast-changing world (pp. 181–203). Krakow: Jagiellonian University Press.

Gerc, K., & Kuźniar, K. (2015). Subjective and family determinants of parental attitudes of parents of children with primary immunodeficiencies treated with immunoglobulin substitution. In A. Margasiński (Ed.), Systemic family: Theory and research (pp. 78–99). Warsaw: Psychological Test Laboratory of the Polish Psychological Association.

Hansen, S. N., Schendel, D. E., & Parner, E. T. (2015). Explaining the increase in the prevalence of autism spectrum disorders: The proportion attributable to changes in reporting practices. JAMA Pediatrics, 169(1). https://doi.org/10.1001/jamapediatrics.2014.1893

Heszen, I., & Sęk, H. (2007). Psychologia zdrowia [Health psychology]. Warsaw: Wydawnictwo Naukowe PWN.

Kaczmarek, Ł., & Aleszczyk, K. (2013). The mechanism of mental resilience: A two-step mediation model involving coping strategies and positive affect among musician artists. Psychological Journal, 19, 67–72.

Kadesjö, B., Gillberg, C., & Hagberg, B. (1999). Brief report: Autism and Asperger syndrome in seven-year-old children: A total population study. Journal of Autism and Developmental Disorders, 29(4). https://doi.org/10.1023/A:1022115520317

Keefer, A., Kreiser, N. L., Singh, V., Blakeley-Smith, A., Reaven, J., & Vasa, R. A. (2018). Exploring relationships between negative cognitions and anxiety symptoms in youth with autism spectrum disorder. Behavior Therapy, 49(5). https://doi.org/10.1016/j.beth.2017.12.002

Kishida, K., T., De Asis-Cruz, J., Treadwell-Deering, D., Liebenow, B., Beauchamp M. S., & Montague, P. R. (2019). Diminished single-stimulus response in vmPFC to favorite people in children diagnosed with autism spectrum disorder. Biological Psychology, 145, 174–184. DOI: 10.1016/j.biopsycho.2019.04.009

Lemanek, K. (1994). Research on pediatric chronic illness: New directions and recurrent confounds. Journal of Pediatric Psychology, 19, 143–148.

Letzring, T., Block, J., & Funder, D. C. (2005). Ego-control and ego-resiliency: Generalization of self-report scales based on personality descriptions from acquaintances, clinicians, and the self. Journal of Research in Personality, 39, 395–422.

Lewandowska-Walter, A., Kichler, K., & Trawicka, A. (2014). The balance of the family system and satisfaction with life and the well-being and styles of coping with stress of mothers of children with disabilities. Psychological Forum, 19(3), 336–354.

Maisel, M. E., Stephenson, K. G., South, M., Rodgers, J., Freeston, M. H., & Gaigg, S. B. (2016). Modeling the cognitive mechanisms linking autism symptoms and anxiety in adults. Journal of Abnormal Psychology, 125(5). https://doi.org/10.1037/abn0000168

Margasiński, A. (2009). SOR. Skale Oceny Rodziny. Polska adaptacja FACES IV- Flexibility and Cohesion Evaluation Scales [Family Assessment Scales (SOR): Polish adaptation of the FACES-IV Flexibility and Cohesion Evaluation scales]. Warsaw: Pracownia Testów Psychologicznych.

Margasiński, A. (2011). Model Kołowy i FACES jako narzędzie badania rodziny. Historia, rozwój i zastosowanie [The Circumplex Model and FACES as a family research tool: History, development and application]. Częstochowa: Wydawnictwo Akademii Jana Długosza.

Margasiński, A. (Ed.). (2015). Systemic family: Theory and research. Warsaw: Psychological Test Laboratory of the Polish Psychological Association.

Matson, J. L., & Kozlowski, A. M. (2011). The increasing prevalence of autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1). https://doi.org/10.1016/j.rasd.2010.06.004

Mikolajczak, M., Gross, J. J., Stinglhamber, F., Lindahl Norberg, A., & Roskam, I. (2020). Is parental burnout distinct from job burnout and depressive symptoms? Clinical Psychological Science, 8(4), 673–689. https://doi.org/10.1177/2167702620917447

Mikolajczak, M., & Roskam, I. (2018). A theoretical and clinical framework for parental burnout: The balance between risks and resources (BR2). Frontiers in Psychology, 9. https://doi.org/10.3389/fpsyg.2018.00886

Minshew, N., Sweeney, J., Bauman, M., & Webb, S. (2005). Neurologic aspects of autism. In F. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and pervasive developmental disorders (pp. 473–514). Hoboken, NJ: John Wiley & Sons.

Neil, L., Olsson, N. C., & Pellicano, E. (2016). The relationship between intolerance of uncertainty, sensory sensitivities, and anxiety in autistic and typically developing children. Journal of Autism and Developmental Disorders, 46(6). https://doi.org/10.1007/s10803-016-2721-9

Nimmo-Smith, V., Heuvelman, H., Dalman, C., Lundberg, M., Idring, S., Carpenter, P., Magnusson, C., & Rai, D. (2020). Anxiety disorders in adults with autism spectrum disorder: A population-based study. Journal of Autism and Developmental Disorders, 50(1). https://doi.org/10.1007/s10803-019-04234-3

Novak, J. M. (2017). Sport dla osób z niepełnosprawnością w Stanach Zjednoczonych. Perspektywa terapeutyczna [Sports for people with disabilities in the United States: A therapeutic perspective]. In I. Sikorska, K. Gerc, & L. Pawlowski (Eds.), Sportowcy z niepełnosprawnością [Athletes with disabilities] (pp. 71–81). Krakow: Wydawnictwo AFM.

Ogińska-Bulik, N., & Juczyński, Z. (2008). Skala pomiaru prężności (SPP-25) [Resilience Measurement Scale (SPP-25)]. Nowiny Psychologiczne, 3, 39–56.

Olson, D. H. (2000). Circumplex model of marital and family systems. Journal of Family Therapy, 144–167.

Olson, D. H. (2011). FACES-IV and the Circumplex model: A validation study. Journal of Marital & Family Therapy, 37(1), 64–80.

Olson, D. H., & Goral, D. M. (2003). Circumplex model of marital and family systems. In F. Walsh (Ed.), Normal family process (pp. 514–547). New York, NY: Guildford.

Pellicano, E. (2018). Autism: Face processing clues to inheritance. Current Biology, 18, 748–750.

Pisula, E. (2007). Parents and siblings of children with developmental disorders. Warsaw: University of Warsaw Publishing House.

Roskam, I., Aguiar, J., Akgun, E., Arikan, G., Artavia, M., Avalosse, H., Aunola, K., Bader, M., Bahati, C., Barham, E. J., Besson, E., Beyers, W., Boujut, E., Brianda, M. E., Brytek-Matera, A., Carbonneau, N., César, F., Chen, B., Dorard, G., dos Santos Elias, L. C., Dunsmuir, S., Egorova, N., Favez, N., Fontaine, A., & Mikolajczak, M. (2021). Parental burnout around the globe: A 42-country study. Affective science, 2, 58–79. https://doi.org/10.1007/s42761-020-00028-4

Roskam, I., Raes, M. E., & Mikolajczak, M. (2017). Exhausted parents: Development and preliminary validation of the parental burnout inventory. Frontiers in Psychology, 8(163). https://doi.org/10.3389/fpsyg.2017.00163

Siu, O. L., Hui, H. C., Phillips, D. R, Lin, L., Wong, T., Shi, K. (2009). A study of resiliency among Chinese health care workers: Capacity to cope with workplace stress. Journal of Research in Personality, 43, 770–776.

Sorkkila, M. (2020). Risk factors for parental burnout among Finnish parents: The role of socially prescribed perfectionism. Journal of Child and Family Studies, 29, 648–659. https://doi.org/10.1007/s10826-019-01607-1

Vukušic, A. M. (2018). Self-Evaluation of parental competence: Differences between parents with pedagogical and non-pedagogical professions. World Journal of Education, 8(2), 1–9. https://doi.org/10.5430/wje.v8n2p1

Wiegner, S., & Donders, J. (2000). Predictors of parental distress after congenital disabilities. Journal of Developmental and Behavioral Pediatrics, 21, 271–277.

Wigham, S., Rodgers, J., South, M., McConachie, H., & Freeston, M. (2015). The interplay between sensory processing abnormalities, intolerance of uncertainty, anxiety and restricted and repetitive behaviours in autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(4). https://doi.org/10.1007/s10803-014-2248-x

World Health Organization. (2018). Autism spectrum disorder. In International statistical classification of diseases and related health problems (11th ed.). https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/437815624

Zeidan, J., Fombonne, E., Scorah, J., Ibrahim, A., Durkin, M. S., Saxena, S., Yusuf, A., Shih, A., & Elsabbagh, M. (2022). Global prevalence of autism: A systematic review update. Autism Research. https://doi.org/10.1002/aur.2696

Published
2023-12-30
How to Cite
Gerc, K., Novak, J. M., & Furman, M. (2023). Functioning of the Family System With an Autistic Child: A Comparative Study Between Poland and California, USA. Multidisciplinary Journal of School Education, 12(2 (24), 321-355. https://doi.org/10.35765/mjse.2023.1224.16
Section
No 22 year 2022 Miscellaneous Articles